To know me is to know that Jena is alive and well…in my heart. She’s the reason I don’t believe in coincidences, she’s the reason why crazy keeps me sane, she’s the reason why I am certain love never ends. Every morning the first email I check is from “The Universe”…don’t judge…just read. The …
Margarete’s Blog
Humpty Dumpty
To meet me, some think I have it all together. Some say I’m strong, amazingly in control and even fearless. Others say I’m just plain crazy. Well, yeah, they’re right. Truth be told, I’m also broken. Life is fragile and precious and it never quite turns out the way you originally …
Taking on The World
It's always an exciting time to attend the Annual Cystic Fibrosis Volunteer Leadership Conference. This year we were filled to capacity...an overwhelming 500 in attendance. Every conference hour is filled with new fundraising ideas, updates on the latest …
Waiting is the hardest part…
The other day I was excited to meet, in person, my Facebook friend who is a young, newly engaged, inspiring woman who happens to have cystic fibrosis...and is being evaluated for a double lung transplant. We were to meet for coffee at the local Starbucks close to her home. It never ceases to …
Believe…LOVE is what’s for Christmas
Read below and see how YOU can receive a FREE signed copy of BEYOND BREATHING Today is "Macy's National BELIEVE DAY" Today Macy's is granting 55 nationwide "wishes" in conjunction with The Make-A-Wish Foundation Today is a day to BELIEVE. In today's world we hear so much about …
Adventure Day 12
The whole point of this "13-Day Adventure to Nowhere" was to desperately try to change the depressed emotional tailspin that occurs between Thanksgiving and December 4th. It's Hell Week in every sense of the word. Thanksgiving 2006 was Jena's last holiday with us, the next day her lungs …
Adventure Day 11
Today was haul ass day. We were still in Florida and had 1,200 miles ahead of us. We loaded up with coffee and gas, and The Starship Escaladewas back in flight. On the road again... Marc cranked up his Willie Nelson and I booted up my iPad; what a perfect couple we make. This is Day …
Adventure Day 10
Time to chart the course back home...oh the heavy sigh... I know, you really feel for me, right? The Adventure has been wonderful and the weather has been picture perfect. We sadly left Key West and headed north on US-1. Marc still feeling a little 'Pirate' thought we should make a stop …
