Today, it has been thirteen years since my first book, Beyond Breathing, went live. Today, it has been 5,441 days since I last hugged my daughter. I know exactly how and when Beyond Breathing began. It was December 12, 2006, when I received a sympathy card, a long letter, and an enclosed $100 …
Cystic Fibrosis
How to Support Someone Living with Cystic Fibrosis – by Guest Blogger M. Bellerose
M. Bellerose juggles her time with the corporate world and yoga workshops. She's very passionate about uplifting other women through positive talk, meditation, and inspirational stories. During her free time, you'll find her meditating in the local park with her two-year-old pug, Toby Cystic …
We All Should Go Xtreme In Life
“Whether you think you can, or you think you can't – you're right” –Henry Ford Think you can’t go extreme? Think again. Going extreme is more than hiking. It’s more than strapping on your boots, throwing on a backpack, and enduring three months of grueling training. It’s more than you signed …
About that WEGO Health Award nomination…
Tell me, what is WEGO Health, and why are you nominated for an award as a Patient Leader? Good question. I asked the same thing. Here you go; WEGO Health is a mission-driven company connecting healthcare with the experience, skills, and insights of Patient Leaders. Apparently, I‘m a …
Because I am a CF Mama
♥ So here's the thing... I am a CF Mama I am 50% genetically responsible for my two kids having Cystic Fibrosis and I am 100% responsible for my unconditional love for them. I became a prized fighter against insurance companies, unnecessary testing, and ridiculous bureaucratic …
The Second Date
Today is December 4th…to me that is the anniversary of “the second date.” I wish that was good but the tears streaming down my face tells me otherwise. It’s the second date that comes after the dash, as in 3/13/1993 - 12/4/2006. Those are my daughter’s two dates. I hate that she has a second …
06/17/2009 — CBS 2 New York Interview
Margarete Cassalina, author of the memoir, Beyond Breathing , was interviewed by Cindy Hsu on CBS 2 New York. …
06/11/2009 — New York Times: The Voices of Cystic Fibrosis
Margarete Cassalina, author of the memoir, Beyond Breathing , was interviewed by The New York Times. The article in the Well Section was titled: The Voices of Cystic Fibrosis Click here to read: NEW YORK TIMES ARTICLE …