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Positive

Personal Journey · November 14, 2017

Positive. It’s a great word. Put it next to anything and it’s even better.
Positive attitude.
Positive charge.
Think positive.
Positive Impact.

All good things, right?

Yeah, that’s what I used to think too.
Then there came a time when positive wasn’t a good thing and putting it next to something made it worse.

(excerpt from Beyond Breathing)
     It’s positive.
     My whole life I had always thought positive was a good word. Webster’s dictionary defines it as “favorable.” And when seven doctors at Westchester Medical Center walked into my newborn son’s neonatal ICU room and told me that Eric had tested positive, my first reaction was, “Great! Now let me take him home.”
Slow down, not so fast.
     Eric was born with meconium ileus, a blockage in the intestines that usually comes out during childbirth. His didn’t. I was still recovering from having him at Vassar Brothers Hospital when I was asked by the doctor on call to pick either Albany Medical Center or Westchester Medical Center because Eric needed to be flown to one of them immediately. I looked at Marc, who looked back at me and then at the anxious, waiting physician and blurted out “Westchester.” 
     Two people in red flight suits walked in and put Eric in a small, clear box called an isolette and had wires hooked up to him. They whisked Eric off to a waiting helicopter.
     I discharged myself, and Marc and I drove by car to meet Eric at Westchester Medical Center which was over an hour away. He was already in the Neonatal Intensive Care Unit (NICU) by the time we arrived. They ran tests for two days, trying to figure out what was wrong with my baby boy. Finally they had one more test to give him: a sweat test.
     Marc and I were in our sterile yellow garments in the NICU unit. I was rocking Eric in the rocking chair, staring at him. His tiny hand grasped my pinky. He was swaddled in the hospital blanket, which did a poor job of hiding all the wires that were attached to him.
     Dr. Doom, the only woman of the seven doctors who had trooped in, reached for my hand when she said that Eric had tested positive. Still, it didn’t compute. “The tests are positive. Your child has cystic fibrosis.”
     Marc looked at me and then at the solemn faces of the rest of doctors. That is when I realized that positive is not always a good thing. Eric had tested positive for cystic fibrosis, and that was not a good thing.
Cystic fibrosis (CF) was unknown to me—a new mom who had just given birth three days ago. What was CF? How did Eric get CF? How can we get rid of CF? Is CF bad? One sentence from Dr. Doom would sum it all up for me.
“CF is a fatal genetic disease.”
(end of excerpt)

That’s not positive.
But I was.
Even though I had no idea what the future held for my son, I knew I had a choice. I could spiral into a pool of fear, negativity and depression or I could face the unknown through a positive lens. My narrative would directly impact my son and a realistic positive tone would be the sound he’d hear.

In time, I learned to turn positive back into something good. In time, I learned that if I searched hard enough, even when I was at the point of a breakdown, there is something positive to hang on to. There has to be. Life is worth every breath and a positive approach is worth the emotional effort.

Having both children test “positive” to cystic fibrosis was undeniably a negative.
But choosing to make their lives positive, full of optimism, love, and adventure ended up proving to them, as well as me, that challenges you face are yours to overcome.
Life hits you hardest when you’re not looking. The choice of what you do with that is totally up to you. It will make all the difference in the road ahead.

Each step, either positive or negative, will lead you farther down that path.
Which direction do you choose?

Filed Under: Personal Journey Tagged With: 2017, Beyond Breathing, cystic fibrosis, Positive

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Margarete Cassalina is a motivational speaker, award-winning author, and national advocate for the Cystic Fibrosis Foundation. Read More…

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