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The VIP after-party is booked!
With a cool Bonnie and Clyde vibe, we will be sipping on cocktails inside a 1904 Bank Vault at Trinity Place Bar and Restaurant in NYC. It’s reserved for all the attendees of The Breath of Life Gala on November 17, 2022 who would like the night to continue...
It’s going to be an amazing night! 🥂
Breath of Life Gala
Thursday, November 17, 2022
Cipriani 25 Broadway
25 Broadway,
New York, NY 10004
Start time: 6:00PM
https://events.cff.org/NYCBreathofLifeGala
The wow factor.
They were here in America for their annual Strategic planning session and I was hosting them for a weekend to do a #WomenLeadership Weekend Workshop.
These women from Kenya, work at African Mission Health are, and are all Vice Presidents of their departments.
The weekend was a #Masterclass...for me.
My #goal for them was to enjoy the Hudson Valley (NY) and correlate each experience with life.
We began with a getting-to-know-you lunch.
(Willingness in trying something new)
A strenuous #hike.
(How hard are you willing to climb over challenging steps in life to reach your goal)
Ice Cream
(Always take a moment to reward yourself. Enjoy the good stuff)
Relaxing dinner
(Make the time for fellowship and friendship)
Wine workshop evening
(Be vulnerable. Sharing is growth, enjoyable, and sometimes emotional)
Morning Coffee (and Tea) discussions
(Good sleep, good health, and a fresh outlook on things are vital components)
Walk across the Walkway
(Ready to not just talk but Walk the Walk)
#Wine tasting on a Family-owned farm, with live music
(Reflection, celebration, bonds created, tribes are made, villages are built)
Countless #hugs, strong embraces, and promises we know we’ll keep.
These endearing ladies taught me so much more this past weekend than I could have ever imagined.
I didn’t know what to expect. I didn’t know anything about them except they were leaders in their field of expertise.
I went into the weekend excited, slightly nervous, and ready for the cool adventure I was about to experience.
I got the wow factor.
A weekend I’ll forever cherish
A #friendship that will last a lifetime.
🎬That’s a wrap! 🎥
I can’t share what it was about but you know it had to be something special to have a film crew come to your house to record it!
ADDITIONAL EDIT:
During the filming, the room was quiet as Marc was talking. And then out of nowhere our Soundsystem turned on and music 🎶 was playing throughout the entire house.
Why do I think Jena was doing her best to be a part of this? #LoveNeverEnds 😇

We drove up to the Adirondack High Peaks in upstate New York because we are #InThisTogether for all those with #CysticFibrosis
Today we were on the Mt Seymour trailhead at 7:15 at 35° to do our virtual Cystic Fibrosis Foundation Xtreme hike (for CF Western-Carolinas Xtreme Hike) today.
Ian postponed their hike until Oct 14th-16th.
We hiked a very muddy, slippery, and steep 14-mile out and back on Mt Seymour, at 4,120ft
Best of luck and happy hiking to all those that did their virtual hike today and those that will be boots on the ground on the rescheduled hike October 14-16.
How far would you go for the cure?
The countdown begins!
Yesterday Marc and I did the Breath of Life event walk-through of Cipriani’s yesterday. Cipriani 25 Broadway is downtown, directly across from The Wall St Bull.
What a venue! Wow!
Upon arrival we were treated with their signature Bellini and took a tour of the impressive event space before the menu tasting began.
After many exquisite wines and amazing culinary choices, I think we’ve narrowed the menu down to something everyone would enjoy.
Whether Congressional Advocacy, National Chairs, National Committee, and Board members, or local fundraising, in 31 years we’ve never said no to the Cystic Fibrosis Foundation in anything asked of us if it helped forward their mission of cure and control of cystic fibrosis.
To be honored as this year’s Breath of Life Honorees is beyond humbling.
The love and support from everyone is overwhelming.
Thank you all for helping us get this far, let’s continue our mission until CF stands for cure found!
Breath of Life Gala
Thursday, November 17, 2022
Cipriani 25 Broadway
25 Broadway,
New York, NY 10004
Start time: 6:00PM
Room Block-New York Marriott Downtown
85 West Street, New York, NY 10006
For tickets and sponsorship please click on link:
https://events.cff.org/NYCBreathofLifeGala
Another training hike. Number 25 of the 46ers
#hiking
Another weekend of hiking on the schedule
Me. Him. 33 years of date nights.❤️
(Excerpt from my 1st book Beyond Breathing)
"Then one Tuesday evening in August, Debbie gave him my phone number and he called. After a long conversation, I agreed to go to dinner with him that Friday night. Marc picked me up and took me to dinner at Foster’s Coach House Restaurant on August 11, 1989, and we have been together ever since."
Happy 33 years of celebrating date night.
Marc Cassalina, I love you! ❤️ ❤️ ❤️
#FirstDateAnniversary
#33YearsOfDatingYou
#August11
11th Annual CF Mamas Trip
12 years ago at a National Cystic Fibrosis Conference, the five of us immediately bonded over how no one in our lives fully understood what it was like to have an expiration date stamped on our children’s lives when they were born, as only a CF mama could understand.
Before the conference ended, we promised each other we’d find a way to go on a ‘much-needed’ vacation together.
It took a full year, but we did it.
You’d be amazed at the hurdles we’ve overcome to make this annual trip happen. Our families even refer to our group as ‘the Mamas’ and bend over backwards to do what they can to so we can be together. This year was no different.
Our friendship is not frivolous, it is a priority.
Our bond is built with a language foreign to most. Our conversations are raw and vulnerable and often go until the wee hours of the night. Nothing is off limits so our time is filled with laughter so hard our bellies hurt and tears so fierce our hearts do.
This isn’t your normal girls' trip.
This doesn’t ‘just happen.’
We climb mountains of obligations and personal turmoil to be together.
We make it happen.
It’s that important.
I think this might sum us up:
“If ever there is a tomorrow when we’re not together, there is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we are apart, I’ll always be with you.”
-A.A. Milne
*with wine 😉
I hope everyone reading this has found that kind of bonded friendship. If not, please make it a priority. It’s so very worth it.
#CFmamasTrip
#13513
#CircleOfTrust
#11thAnnualTrip
