Today, it has been thirteen years since my first book, Beyond Breathing, went live. Today, it has been 5,441 days since I last hugged my daughter. I know exactly how and when Beyond Breathing began. It was December 12, 2006, when I received a sympathy card, a long letter, and an enclosed $100 …
cystic fibrosis
Your mission? Here’s a Clue
Remember the challenging board game: Clue? The object of the game is for players (characters) to strategically move around the game board (a mansion), collecting clues from which to deduce which suspect murdered the game's perpetual victim: Dr. Black, and with which weapon, and in what …
LIMITED Time, Limited SUPPLY – Embracing the Beauty in the Broken
***LIMITED SUPPLY*** Hey guys! If you've ever thought about reading Embracing the Beauty in the Broken and wanted a signed copy--well, thanks to COVID I've got some on hand! Due to COVID-19, all my upcoming speaking engagements have been canceled or postponed. I have a limited supply of …
How to Support Someone Living with Cystic Fibrosis – by Guest Blogger M. Bellerose
M. Bellerose juggles her time with the corporate world and yoga workshops. She's very passionate about uplifting other women through positive talk, meditation, and inspirational stories. During her free time, you'll find her meditating in the local park with her two-year-old pug, Toby Cystic …
About that WEGO Health Award nomination…
Tell me, what is WEGO Health, and why are you nominated for an award as a Patient Leader? Good question. I asked the same thing. Here you go; WEGO Health is a mission-driven company connecting healthcare with the experience, skills, and insights of Patient Leaders. Apparently, I‘m a …
Featured in Woman Wednesday – My Q&A
I was asked to be featured in an international blog, 'Woman Wednesday' whose focus is to inspire women around the world, talk about an honor. Me? Whoa. It was published today; here's what I wrote. 1. What are you passionate about? I am passionate about living my best life, which includes …
Raw and Real
"Wow, you have beautiful eyes, are they yours?" This was the question slash compliment from the cashier at Publix this morning. "Thank you, yes they are, and so are the wrinkles," I answered; covering up my inability to take a compliment by my self-deprecating humor. It was …
Because I am a CF Mama
♥ So here's the thing... I am a CF Mama I am 50% genetically responsible for my two kids having Cystic Fibrosis and I am 100% responsible for my unconditional love for them. I became a prized fighter against insurance companies, unnecessary testing, and ridiculous bureaucratic …
