My baby girl is turning 20. In heaven. This is a CELEBRATION of her life...join me won't you? Scroll with me for a minute down memory lane... Jena was born to live two worlds. She was special (and messy) from day one. She wore her own …
Personal Journey
No more footsie PJs
At age 5, Jena already had a strong will, a mind of her own, and conviction like no other. I would tell her she'd be a successful adult but as my daughter who wouldn't listen....well, let's just say...we had many heated discussions. Jena never got that chance to utilize those skills as an adult. …
In Search of…
Ok raise your hand if you remember the TV series, In Search of...? Yes? Then like me, you're old too. Remember the TV Series started with this narrative after that eerie music: "...This series presents information based in part on theory and conjecture.The producer's …
21 “Bud” Salute
Today is my son's 21st birthday and yes it's a big deal. His 19th was HUGE, which I explained in my R-rated-titled-BLOG→: "FU2CF" But TODAY, he's 21! Where did the time go? Where did my little boy go? They say a picture is worth a thousand words, well then here are …
My Morning with Jena…yes, Jena
To know me is to know that Jena is alive and well…in my heart. She’s the reason I don’t believe in coincidences, she’s the reason why crazy keeps me sane, she’s the reason why I am certain love never ends. Every morning the first email I check is from “The Universe”…don’t judge…just read. The …
Humpty Dumpty
To meet me, some think I have it all together. Some say I’m strong, amazingly in control and even fearless. Others say I’m just plain crazy. Well, yeah, they’re right. Truth be told, I’m also broken. Life is fragile and precious and it never quite turns out the way you originally …
Taking on The World
It's always an exciting time to attend the Annual Cystic Fibrosis Volunteer Leadership Conference. This year we were filled to capacity...an overwhelming 500 in attendance. Every conference hour is filled with new fundraising ideas, updates on the latest …
Waiting is the hardest part…
The other day I was excited to meet, in person, my Facebook friend who is a young, newly engaged, inspiring woman who happens to have cystic fibrosis...and is being evaluated for a double lung transplant. We were to meet for coffee at the local Starbucks close to her home. It never ceases to …
