NY State Advocacy Day in Albany, NY

Margarete Cassalina, author of the memoir, Beyond Breathing , will be joining others from the CF community and travel to Albany for  New York State Advocacy Day for cystic fibrosis. They will discuss the latest successes of the Cystic Fibrosis Foundation and the needs our government can support.

In the State Capitol, they will ask legislators to protect funding for key health programs – such as the Adult Cystic Fibrosis Program and Medicaid — to ensure that people with cystic fibrosis continue to get access to high-quality, specialized treatments.

Through the Cystic Fibrosis Foundation’s efforts, people with CF are living longer than ever before, yet more needs to be done to help extend the lives of those with the disease.

Federal and state governments play a vital role in CF research, drug development and the ability of people with CF to access care centers and therapies. The Cystic Fibrosis Foundation urges federal and state elected officials to join us in our efforts to add tomorrows to the lives of people with cystic fibrosis.

We need the support of elected officials in Washington and in state capitols throughout the nation to fulfill our mission and help extend the lives of those with the disease.

More information regarding:  The Cystic Fibrosis Foundation